Tuesday, February 17, 2009

update on Hannah

>>
> Just a quick update this afternoon....Hannah had a pretty good night last
> night. She was very restless all afternoon and early evening, but about
> 9:00 they gave her something to help her settle down and sleep, She slept
> pretty well after that, but had some periods of wakefulness where she would
> talk to us. It's difficult to understand some of what she says, but she is
> still working to communicate. This morning, she sat up and ate part of a
> Krispy Kreme doughnut (while communicating to us that it was not as good as
> a Spudnut...you El Dorado readers will appreciate that!) She has slept
> peacefully all afternoon, but did wake up long enough to eat an orange.
>
> Our regular oncologist came by and visited with us today. He said that the
> MRI indicated that the original tumor has returned, bigger than ever, all of
> the other existing spots are bigger, and there are new spots. He actually
> used the word "disturbing" to describe the progression of the disease. He
> did say that he believes the chemotherapy had some effect...basically, that
> it would be even worse if we had not done that...and that the chemo probably
> gave us some additional time. He came into the room and shared the results
> with Hannah and told her that we were out of medical options. She accepted
> the news gracefully and without fear.
>
> It looks like we are going to spend another night here at Children's.
> We should be moving to a hospice facility here in Little Rock tomorrow
> morning. We have decided not to do a home hospice program due to the fact
> that Hannah has a continuing need for platelets to keep her from having any
> more severe bleeding episodes, and she cannot get those in a home setting.
> There is a hospice center on Bowman in Little Rock that is willing to
> provide platelet infusions, and our social worker is working out the details
> for us to go there. It sounds like an excellent facility. We have lots of
> family here with us, keeping us company. Hannah recognizes everyone and
> does her best to visit as she is able.
>
> We are so thankful that Hannah is in no pain or distress, and is
> resting very comfortably and peacefully. We believe that the arms of Jesus
> are open wide to receive her when she is ready to go, and that provides an
> unimaginable peace. We have received so many wonderful emails over the past
> few days, and although we cannot respond to all of them, please know that
> every one is being read, treasured, and saved. We are so blessed to have so
> many wonderful prayer warriors lifting us before the throne. Thank you.
>
> God is good, all the time!
>
> Jill & Brad

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